Tuesday, April 27, 2010

Spreading the Word

I'll start with CHECK THIS OUT!
That's the most important part of my post. Read on if you still desire.

I recently heard about some friends from my youth who have a 9 month old son born with a life-threatening disease called Junctional Epidermolysis Bullosa, Herlitz type, and was given less than one year to live. His skin blisters at the slightest touch and it is most often infection from the sores and blisters that cause death. Can you imagine trying to change a diaper? You can read about them HERE. It's a really informative article and gives you insight to some of the details of this trial I hadn't even considered. My heart has ached for these friends ever since I heard the news.

Recently, their son Daylon was chosen to be the first with this specific disease to be part of a clinical trial in hopes to cure him. The clinical trial is in Minnesota and the family (of seven) resides in California.

My good friend Jeanine and her sister Amy are hosting an online auction in their behalf on their blog Serving Pink Lemonade. It began today and runs through Thursday the 29th. People have donated all kinds of items that are up for bid...small items like necklaces and earrings. And big ticket items like facials and photography sessions (including my favorite photographers of all time whose photoblog I stalk). And all kinds of other stuff in between.

It's definitely worth a look...AND worth a bid. Seriously. It's win-win. You get something awesome and this family gets financial help that they really need. SCORE.

And for anyone in southern California, a run/walk and carnival is being held this weekend. Read more here.

You can also learn more or help by going to their site: helpmakeamiracle.org and donate straight to the cause.

And don't forget to spread the word.


jeanine said...

Thank you Thank you Thank you--for spreading the word... and for the purses!

Kipn n' Sarah said...

So I stole your post and put it on my page. I had something there but it was not nearly as informative as what you had and I wanted to get as much information out as I could to help them out. I hope you don't mind, I did say I stole it from you on there. Thanks for the great post with the wonderful links.

Lauri said...

I saw the Press Enterprise article. What a story! This was a great post and I hope the silent auction brings in a lot of money for Jennifer and fam.

btw, your purses are darling.

The drama known as Greens.... said...

When I grow up I want to be you! I hope I win the blue and white purse...CUTE!!!! I love ya girl, thanks for being you!

Autumn said...

Thanks for the info!

Amanda B. said...

Wow! How sad and scary! I will definitely check it out. Thanks for spreading the word. I hope all works out for them! How heartbreaking for his parents. :(

utmomof 5 said...

Thanks for the link, not only did I get to help the family but I won a cute new purse (the red paisley one) too :)

Natalie said...

I had know idea... glad you posted this.